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Rising awareness programs
Rising awareness programs plays a pivotal role in driving the growth of the global primary sclerosing cholangitis market. Various non-profit organizations like PSC Partners Seeking a Cure conduct awareness drives to educate people about the symptoms and management of this rare disease. Their educational initiatives like webinars, conferences and social media campaigns have increased understanding about primary sclerosing cholangitis (PSC) among the general public as well as healthcare community. This expanding awareness enables early detection of the condition. When diagnosed at an early stage, PSC can be managed better through lifestyle modifications and medical interventions. Awareness programs encourage people with symptoms to schedule an appointment with a gastroenterologist for timely diagnosis using techniques like magnetic resonance cholangiography. As more patients are diagnosed, there is huge demand for management and treatment options. Government bodies are also supporting awareness generation efforts. For instance, the National Organization for Rare Disorders (NORD), a non-profit organization funded by the U.S. Department of Health and Human Services, includes PSC in its rare disease database and provides educational materials on symptoms, testing and management. In 2021, according to NORD data, requests for PSC information grew by over 15% compared to 2020, reflecting the increasing awareness about this disease. In addition,, awareness campaigns are prompting research funding and development of novel drugs. Advocacy groups organize fundraisers to support clinical trials. As understanding increases about disease mechanisms, pathways and targets, pharmaceutical companies are spurred to develop effective therapies. For instance, in 2021, according to the study published by Clinics and Research in Hepatology and Gastroenterology, obeticholic acid was effective in improving biomarkers of PSC, indicating a treatment option.
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